Javier Alfaro recently celebrated his 50th birthday by having a party with his friends.
In support of his young son, Diego, Javier asked his guests to make a donation to the Myotubular Trust to mark his special day.
Diego, who has centronuclear myopathy, lives with his family in Spain.
We are thankful to Javier, and to his friends and family for their continued kindness and generosity. We really appreciate all the support that they have given the Trust over the years.
Belated birthday wishes Javier – we hope you all had a great time at the party!
Thanks again to you all.