PLEASE DONATE

CLICK HERE

NEWS & UPDATES

People Behind The Trust


Communications Manager

Melanie Spring

Melanie Spring

Communications Manager

Melanie Spring has been with the Myotubular Trust since November 2008, and is the first point of contact for families, the medical community and researchers.

melaniespring@myotubulartrust.org

Co-Founding Parents

Anne Lennox

Anne Lennox

Chief Executive

Anne Lennox, mother of Tom, is one of the Founders of the Trust, and runs the Trust on a day to day basis. Anne is our Chief Executive.

Wendy Hughes

Wendy Hughes

Family Support

Wendy Hughes, mother of Zak, is one of the Founders of the Trust and provides families and individuals with support, as needed.

Scientific Advisors

Professor Victor Dubowitz

Professor Victor Dubowitz

Founding Patron

Emeritus Professor of Paediatrics, Imperial College, London
President of World Muscle Society
Founding Editor of Neuromuscular Journal

Professor Francesco Muntoni

Professor Francesco Muntoni

Scientific Advisor

Professor of Paediatric Neurology, University College, London
Head of Dubowitz Neuromuscular Centre, Institute of Child Health,
Great Ormond Street Hospital for Children, London

Professors Dubowitz and Muntoni are based at one of the largest Paediatric Neuromuscular Units in Europe which has been designated by the Department of Health as a National Reference Centre in the UK for a series of congenital neuromuscular conditions.

Trustees

Andrew Lennox

Andrew Lennox

Parent Trustee and Lay Chair of Scientific Advisory Board

 

James Rosling

James Rosling

Treasurer

 

Patricia Allen

Patricia Allen

Trustee

 

Gary Browning

Gary Browning

Trustee

 

Gregory Fowler

Gregory Fowler

Parent Trustee

 

 

 

Tom Lennox and Zak Hughes, 2006.

Choose your language...