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Melanie Spring has been with the Myotubular Trust since November 2008, and is the first point of contact for families, the medical community and researchers.
Anne Lennox, mother of Tom, is one of the Founders of the Trust, and runs the Trust on a day to day basis. Anne is our Chief Executive.
Wendy Hughes, mother of Zak, is one of the Founders of the Trust and provides families and individuals with support, as needed.
Emeritus Professor of Paediatrics, Imperial College, London
President of World Muscle Society
Founding Editor of Neuromuscular Journal
Professor of Paediatric Neurology, University College, London
Head of Dubowitz Neuromuscular Centre, Institute of Child Health,
Great Ormond Street Hospital for Children, London
Professors Dubowitz and Muntoni are based at one of the largest Paediatric Neuromuscular Units in Europe which has been designated by the Department of Health as a National Reference Centre in the UK for a series of congenital neuromuscular conditions.
Parent Trustee and Lay Chair of Scientific Advisory Board
Tom Lennox and Zak Hughes, 2006.