We were very fortunate this year to have had two London Marathon runners – Tom Deakin and Leigh Jones. Tom ran in memory of his little nephew, Oliver, while Leigh ran in support of his close friend, Georgina.

Both Tom and Leigh ran in fantastic times, despite a drastic change in the weather which, in the space of days, had gone from ice and snow to intense sunshine, allowing no time to adjust.

Leigh told us after the run, “Running the London Marathon was both the hardest and greatest thing I’ve ever done! I’ve never been prouder of an achievement, especially in (brutal) heat. My goal was to raise £1000 for The Myotubular Trust, in support of my friend Georgina and her family, and thanks to an enormous amount of generosity the final tally smashed my target!!”

Tom told us, “I am no athlete and spent much of my life avoiding any form of exercise. As the enormity of the marathon dawned on me and the training got serious, the support and generous donations from friends and family were much appreciated in keeping me focused on completing the marathon, honouring Oliver, and ultimately raising as much funds as possible to advance the vital research and find a treatment.”

A huge thanks to Tom and Leigh for their tremendous support, and to their friends and family who went along to cheer them on and meet them at the finish line, and of course to their very generous sponsors. We are grateful to you all!