Louisa and Michael Oliver are delighted to have won the support of their school, in memory of Michael’s cousin Daniel. They are hopeful that other children will follow their example and ask for support for the Myotubular Trust from their own schools.

Louisa said “Within our school, we each belong to one of four houses: Kestrel, Hawk, Falcon and Condor. Every year we have the opportunity to raise money for a chosen charity over the school year. This year it was transformed into a house competition: where each tutor group had to create a powerpoint on the charity they wished to represent; which was to be judged by the Kestrel house prefects and the head of house.

In my tutor, of K9, the idea of supporting Myotubular Trust was first voiced by my cousin Michael Oliver, as his cousin – Daniel – had passed away due to Myotubular Myopathy when he was just 18 months old.

I created the powerpoint with the focus of Daniel and his condition but also embedding the lifestyle of Zak, as he is around our age, 14 years old, and is living with a milder case of this inherited disease. The presentation was very emotional for the prefects, and myself and the other prefects were teary eyed before the end, as I had created it from my family’s personal perspective. The powerpoint was a huge success and there was a unanimous vote to make it our house charity.