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We are truly grateful to all those who have supported the Myotubular Trust since we were founded. Your support has made it possible to fund promising, pioneering research. Thank you so much.
This film has been made with the kind sponsorship of Tradeweb
Join us in changing the lives of children like Matthew and their families who are affected by this rare disease. A cure or treatment is no longer a pipe dream – but only you can make it a reality.