Fundraising News


Texel Finance Team Touched By Tom’s Story

Texel Finance Team Touched By Tom’s Story

The lifeblood of the Myotubular Trust ever since we were founded has been the generous support of the extended families and communities around individual children. The effect has ‘rippled’ out further than we ever could have imagined, as came about in recent months...

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Second ‘Will’s Day’ is a Resounding Success

Second ‘Will’s Day’ is a Resounding Success

Our heartfelt thanks go once again to Sue and Donna, two amazing Nans who along with a team of very generous and supportive friends and relatives, arranged the second ‘Will’s Day’. We are truly grateful for Donna and Sue's continued support in raising research funds...

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Cardiff Half Marathon Run for William

Cardiff Half Marathon Run for William

Despite having only signed up for the 2011 Lloyds TSB Cardiff Half Marathon a week before taking part, Leah Paige Watts completed the run in just 2 hours and 8 minutes and was quite rightly very pleased with her finishing time. Leah chose to raise sponsorship for the...

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Abcam’s IT Victory Over Labs

Abcam’s IT Victory Over Labs

We would like to thank and congratulate the IT department football team at Abcam Plc for supporting the Myotubular Trust at their second charity football match this year. The game pitched the laboratory building versus the IT department, with the winner donating £250...

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Jack Blunsdon’s Memorial Golf Tournament 2011

Jack Blunsdon’s Memorial Golf Tournament 2011

We would like to extend our heartfelt thanks once again to Karen and Dave who organised the third Jack Blunsdon Memorial Golf Tournament in support of the Myotubular Trust, in memory of their darling son, Jack. As well as organising the event, Dave took part and...

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4 Girls, 3 Peaks, 2 Charities, 1 Massive Challenge!

4 Girls, 3 Peaks, 2 Charities, 1 Massive Challenge!

Our heartfelt thanks and congratulations go to Emily, Liz, Briony and Kathryn on completing the Yorkshire Three Peaks Challenge in cold and wet conditions and raising a great amount in sponsorship for their efforts, with just under £400.00 coming to the Myotubular...

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Football Squad Wins For Nathaniel

Football Squad Wins For Nathaniel

We would like to thank ‘Cardiff Myotubular Trust’ football squad who played and won in a recent football tournament, raising awareness of the Trust and in memory of Jonathan Jenkin's eldest son, Nathaniel, who was born with the rare genetic condition, myotubular...

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Choir Workshop Concerts for Daniel

Choir Workshop Concerts for Daniel

Two choir workshop concerts were held on Friday 8th April at Durham Gala Theatre in support of the Myotubular Trust. Collections were made at both concerts following a nomination from choir member, Meg, who kindly nominated the Trust in memory of her great-nephew,...

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Nick’s Fundraising Hat Trick!

Nick’s Fundraising Hat Trick!

In early 2011 we heard from Nick who told us that he was taking part in the Brighton Marathon in April in memory of his friend’s son, Jack. Nick also mentioned that he was registering to take part in a second fundraiser: the London Hope Walk in May. It was only when...

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Marco’s Primera Swashbuckler Triathlon for Tom

Marco’s Primera Swashbuckler Triathlon for Tom

On Sunday 22nd May, Marco Gregotti took part in the Primera Swashbuckler Triathlon in memory of his family's, and in particular his children's, close friend Tom Lennox. This event, which starts at 5:15am is most definitely not intended for the faint hearted. Marco...

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Chocolate’s a Winner!

Chocolate’s a Winner!

We are delighted to announce the winner of the Easter Chocolate Quiz - Jane Evans. Jane was absolutely thrilled with her chocolate surprise which we were pleased and relieved to hear arrived through the post intact! We would like to thank Jane and everybody who...

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Bournemouth Hope Walk, Sunday 8th May 2011

Bournemouth Hope Walk, Sunday 8th May 2011

Bournemouth Hope Walk, report by Lynn Sainval Click here to see more photos of the Bournemouth Hope Walk 'On Sunday 8th May 2011 30 participants (men, women & children) walked the 4.2 miles along Bournemouth seafront. Starting at Boscombe pier we walked along the...

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Danni’s Determination Succeeds at Leeds Half Marathon

Danni’s Determination Succeeds at Leeds Half Marathon

Not only were we supported in Leeds on Sunday 8th May by the Leeds-Bradford Hope walkers, we were also very fortunate to have been represented in the Leeds Half Marathon by Danni Torr, one of the many wonderful and determined members of Team Will's 1000 Mile Challenge...

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Ali’s Awesome Achievement!

Ali’s Awesome Achievement!

On Sunday 10th April, Ali Ross completed the Brighton Marathon in memory of her friends, Karen and Dave’s son, Jack. Despite the sunshine and heat on the day, Ali finished in a very impressive 4 hours and 54 seconds, and was quite rightly proud of her achievement. Ali...

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Hertfordshire Hope Walk, Friday 6th May 2011

Hertfordshire Hope Walk, Friday 6th May 2011

Hertfordshire Hope Walk report by Laura. Click to see more photos of the Herfordshire Hope Walk. 'I was one of three supporters who helped arrange the first ever Myotubular Trust 20 mile Thames Walk in 2008. This has now become a highly successful annual event in the...

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Dolls Fundraiser Gets Sewn Up By Herts University Students!

Dolls Fundraiser Gets Sewn Up By Herts University Students!

When talented University of Hertfordshire business students, Chen Ling, Wang Jue and Zhang Rexue were set a small business project, they kindly chose to support the Myotubular Trust by donating all their profits. Chen, Wang and Zhang spent two months making no less...

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Shakespeare Plays A Blinder!

Shakespeare Plays A Blinder!

Shakespeare House of Chesham Grammar School, Bucks raises a whopping £1,864.85 in just a week, for the Myotubular Trust! Every year, Chesham Grammar invites House pupils to nominate a charity to benefit from their fundraising during charity week. In September last...

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Cheers Sophie!

Cheers Sophie!

We would like to raise a toast to Sophie Avins who recently held a drinks evening in support of the Trust and raised a fantastic £480.91. We couldn’t agree more with Sophie that it’s not bad for a few hours drinking! Special thanks also goes to Sophie’s work colleague...

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Brook House Fashion Show

Brook House Fashion Show

We would like to extend our gratitude to Camilla Hamilton, Noni Ware, Andrea Muirhead and Julie Heelis for arranging a magnificent fashion show in support of the Myotubular Trust in South London on Wednesday 2nd March. The 100 tickets sold out very quickly, and the...

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Kestrel’s Fundraising Soars To £1,000!

Kestrel’s Fundraising Soars To £1,000!

Louisa and Michael Oliver are delighted to have won the support of their school, in memory of Michael's cousin Daniel. They are hopeful that other children will follow their example and ask for support for the Myotubular Trust from their own schools. Louisa said...

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Live & Let Live!

Live & Let Live!

n December 2010, a group of five Post graduate students of the University of Hertfordshire, formed the group Live & Let Live. In order to complete the Entrepreneurship and Enterprise module of their M.SC Management course, the students had to write a business plan...

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Let The Snow Go On!

Let The Snow Go On!

We would like to extend a heartfelt thanks to Alison Jenkins, who in the past two weeks has held no less than four fundraising events in memory of her little nephew, Nathaniel, raising a total of £2,600. Alison had intended to hold just one event which involved a...

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