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NEWS & UPDATES
Significant step forward in gene therapy for x-linked myotubular myopathyJuly 16, 2025On 15th July 2025, Astellas Pharmaceuticals Inc. announced that they have received approval from the US Drug Regulator, the FDA, to move forward with […]
LIVERPOOL HOPE WALK 2025June 17, 2025Join us at 11.00am on Sunday 14th September for a new Hope Walk for 2025 – the Liverpool Hope Walk. Our annual Hope Walks have been held since […]
Join our 2025 London 10K, 10 Bridges, Hope WalkJune 1, 2025Read about last year’s, 2024 London Hope Walk here! Join us at 10.30am on Saturday 20th September for this year’s London Hope Walk. Our […]
Joint Research Call With Great Ormond Street Hospital Charity (2025/26)May 7, 2025Joint Research Call with Great Ormond Street Hospital Charity (GOSH) 2025/26 Great Ormond Street Hospital Charity has announced their 2025/26 […]
Listen to the Genomics England Podcast, marking Rare Disease Day 2025March 12, 2025To mark Rare Disease Day 2025, we were invited to participate in a podcast for Genomics England to explore the challenges and opportunities shaping […]
We are proud to announce McCarthy Stone are sponsors of our new t-shirts!February 28, 2025We are proud to share the news that McCarthy Stone have sponsored our new supply of fundraiser t-shirts. Our long-term supporter, Duncan, sought […]
You can now watch the TAM4MTM Webinar recordingDecember 27, 2024On 3rd December 2024, the Myotubular Trust hosted a webinar following the news that the TAM4MTM trial had been stopped due to the impact the drug […]
Update from Astellas Pharmaceuticals about their gene therapy programme for XLMTMDecember 17, 2024
Regular Donations
From just £1 a month, a regular bank transfer to the Myotubular Trust soon adds up and really helps continue our vital work to fund research and find a treatment or cure for myotubular and centronuclear myopathy.
It gives us the ability to plan ahead; secure in the knowledge that we have guaranteed income. Regular giving also provides you with an easy and convenient way to control how you give.
All you need to do is select the option to give a regulation donation here.
Alternatively, to set up a standing order via your online banking using the following details:
Account: Myotubular Trust
Bank: Co-Op Bank Limited
Sort Code: 08-92-99
Account No: 65200858
Please gift aid* your donation, that way we can claim an extra 25p for every £1 donated, at no extra cost to you. Please see a fuller explanation of how this works on the Gift Aid Form (*UK tax payers only).
If you are setting up a regular donation via standing order, please do remember to let us know at contact@myotubulartrust.org.
Thank you.