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At Myotubular Trust, we take the holding of personal data seriously.
We collect personal information in a number of ways.
When you give it to us directly: when you request specific information; in order to sign up for one of our events; make a donation; purchase our wristbands, or when you communicate with us.
We do not collect data from any other third party organisations, social media or messaging services, nor do we gather information from cookies on our website to tailor information or advertising to you.
Please note, we use a service called MailChimp to send our e-mails and we’ll never sell your information to anyone. We will not pass your data on to anyone else without your express permission.
At any point, please contact us if you would like us to delete all the data we hold about you – firstname.lastname@example.org