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causes life-threatening muscle weakness in infants and adults
a baby is at severe risk of dying in the first weeks of life
in supporting families and investing in research
for myotubular and centronuclear myopathy
Myotubular and Centronuclear Myopathy are rare genetic muscle conditions that most commonly affect boys from birth, but will sometimes onset later in both boys and girls. The conditions cause profound muscle weakness and dangerously affect the muscles that control breathing and swallowing.
In the most severe form, infants are at risk of dying in their first weeks of life.
Since 2006, the Myotubular Trust has lead the way in both supporting families
and investing in research to find a treatment and a cure.
Join us in changing the lives of those living with these conditions.
Together we are stronger.