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NEWS & UPDATES

  • A new UK-based research project to understand ‘normal breathing’ in under 6’s calls for participants to help our XLMTM community
    About the “Breathing Muscle Strength in Healthy Children” Study at Brunel University London Brunel University London is involved in an […]
  • The First Cork Hope Walk
    It really didn’t matter that it rained on and off, nothing could spoil the good mood of the walkers who had come along for the first Cork Hope Walk. The 8km walk, which was arranged by Orla Lynch and Stephen Stack, took us along the beautiful Rochestown to Blackrock coastal path. The views were stunning despite the grey sky, and we even got to admire Blackrock Castle where we stopped for the obligatory group photos. […]
  • Fundraising For Ruben
    Over 230 guests attended a hugely successful evening event that was arranged by Siân Carson whose gorgeous one year old son, Rubén, has myotubular myopathy. For the price of their tickets guests got to enjoy a beautifully decorated venue, lovely food, great music and endless great opportunities to raise funds. And boy did they do an amazing job of raising funds… […]
  • The Devon Hope Walk turns into a series of walks, raising over £1300 for Myotubular Trust!
    This year we tentatively planned a fourth Devon Hope Walk for the Myotubular Trust for early September, hoping everyone could make it, after once […]
  • Pretty Muddy Race For Life 2019
    Massive thanks and congratulations to Sarah, Emily and Tara, who recently took part in the 10K Pretty Muddy Race for Life at Sefton Park, Liverpool. […]

Hope Walk Weekend


Walk With Us In May

Hope-WalkEach year since 2008, different groups of supporters have taken part in sponsored Myotubular Trust ‘Hope Walks’. We all walk with the same hope in mind – raising research funds to find a cure or treatment for myotubular and centronuclear myopathy.

In 2019, we would love you to join us – or can help you to arrange your own Hope Walk!

 

A Sponsored Hope Walk

This is one of our most enjoyable fundraisers which you can take part in as an individual, as a small group, or something much bigger that involves all your family and friends. Corporate teams are welcome also.

If you would like to arrange a Hope Walk in your local area:

  • we can help you plan it
  • we can provide bespoke registration forms and promotional materials 
  • we can provide advice to help you keep everyone safe, making it as comfortable and as fun as possible
  • we can provide t-shirts for you and your group (subject to availability)

For more information please contact melaniespring@myotubulartrust.org

Cork Hope Walk

 

On 21st September 2019 we pulled on our walking gear and waterproofs, and took on the first Irish Hope Walk in beautiful Cork. We enjoyed stunning views of the estuary, as we walked the Rochestown to Blackrock coastal path, starting at Harty’s Quay, continuing to Blackrock castle and back to Jacobs Island. It was a very pleasant 8km long, fully accessible to wheelchairs and buggies, and followed by a great Irish feast of tea and sandwiches, cake and chat!  There was even a Key West, Florida branch of the day too.  You can read more about the Cork Walk here.

Feel free to email contact@myotubulartrust.org if you have any questions.

 

Devon Coastal Hope Walk
 

 

In 2019 we are planning our Devon Hope Walk, which circles around the pretty village of Noss Mayo. The walk takes place on Saturday 7th September, starting at 1.30pm.  The route is 10K in total, with some rugged rural tracks and hills (with some parts suitable for wheelchairs and buggies).  The scenery along this stretch is really stunning, as you will be taking in the coastal views towards Bantham, Hope Cove, Burgh Island, Plymouth Sound and the Noss Mayo/Newton Ferrers Estuary. The walk will finish at the quaint village pub ‘The Ship’ in Noss Mayo which is situated on the water.  Sometimes the walk is small in number, and on other occasions we’ve been joined by a larger group of friends and locals.  Taking refreshment stops along the way to admire the sea views, it’s a perfect way to spend a morning.

To read more about this event read here Devon Hope Walk 2019

If you would like to join us in 2019, please read our terms and conditions and register here. We look forward to welcoming you!

London Hope Walk - Annual Flagship Event
 

 

 

Our 2019 10k, 10 bridges Hope Walk was pure joy from beginning to end and thankfully the rather damp and chilly weather forecast proved to be wrong.

We were joined by 68 walkers, 9 families and 4 dogs and, as ever, it was a wonderful opportunity to catch up with our old friends and to meet some new ones too.  You can read more about the London Hope Walk 2019 here.

Click here to view the full London Hope Walk photo album using the password ‘MTTHope2019’, courtesy of our long-time supporter and friend, Chrysoulla Rosling.

Brighton Hope Walk
 

 

 

 

 

The Brighton Hope Walk was new for 2015 and was organized by Karen Vardy in memory of her son Jack.

The route was 13.5 miles along the seafront from Brighton Pier to Worthing Pier, with a short stop in Shoreham enroute.

Read about the 2015 Brighton Hope Walk here

 

Cromer Hope Walk
 

The Cromer Hope Walk was new for 2014, and was led by Jennie, Chris and Roy May in memory of Nathaniel. The route was from Aylsham toWroxford and back again, 18 miles along the Bure valley rail footpath.

 

Oldham Hope Walk
 

oldham-5The Oldham Hope Walk is a gorgeous 5 mile/8km walk around Dove Stone Reservoir, Greenfield, taking in some beautiful scenery around the area.

 

Our wonderful Oldham supporters have also abseiled just over 100 feet at Denham Quarry in Chorley, following the popularity of the ‘Walk Down a Tower’ and their 2014 abseil.

Read more about the 2016 walk and abseil

 

 

 

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