NEWS & UPDATES
More than ‘just a coffee morning’ for GeorgeJune 9, 2026Lili and Josh, whose son, George, has myotubular myopathy, and Lili’s friend, Amy, contacted us to say that they were hosting a coffee morning in […]
Patrick’s Manchester half marathonJune 3, 2026Patrick became a huge supporter of the Myotubular Trust having been barber to a young boy, Joshua, who had myotubular myopathy. In Patrick’s […]
10k run in honour of NathanielJune 3, 20262026 marked the year that Nathaniel, who had myotubular myopathy, would have turned 18. In honour of Nathaniel and to mark the milestone, […]
Joint Research Call with Great Ormond Street Hospital Charity (GOSH) 2026/27May 20, 2026Great Ormond Street Hospital Charity has announced their 2026/27national funding call in child health research. Under this funding call £2.5M is […]
Why not join us in London, Saturday 6th June 2026 for the first of three Hope Walks?April 30, 2026We are delighted to invite you to join us for the first of three Hope Walks in 2026. The first walk takes place on Saturday 6th June, in London. […]
Astellas Pharmaceuticals announce dosing of first patient with X-Linked Myotubular Myopathy in VALOR gene therapy trialApril 27, 2026Astellas Pharmaceuticals have announced today that the first patient has been dosed in VALOR, their gene therapy trial for x-linked myotubular […]
Liver Involvement in Myotubular and Centronuclear Myopathy: Findings of a Registry StudyApril 17, 2026A new research publication based on patient registry data has shed light on the prevalence of liver issues in myotubular and centronuclear myopathy […]
New research brings hope for myotubular myopathy, by revealing how muscle cells control their growthMarch 31, 2026The laboratory of Dr Karim Hnia at INSERM in Toulouse recently published the findings of their investigation into the question, Is the mTORC1 pathway […]
Regular Donations
From just £1 a month, a regular bank transfer to the Myotubular Trust soon adds up and really helps continue our vital work to fund research and find a treatment or cure for myotubular and centronuclear myopathy.
It gives us the ability to plan ahead; secure in the knowledge that we have guaranteed income. Regular giving also provides you with an easy and convenient way to control how you give.
All you need to do is select the option to give a regulation donation here.
Alternatively, to set up a standing order via your online banking using the following details:
Account: Myotubular Trust
Bank: Co-Op Bank Limited
Sort Code: 08-92-99
Account No: 65200858
Please gift aid* your donation, that way we can claim an extra 25p for every £1 donated, at no extra cost to you. Please see a fuller explanation of how this works on the Gift Aid Form (*UK tax payers only).
If you are setting up a regular donation via standing order, please do remember to let us know at contact@myotubulartrust.org.
Thank you.