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NEWS & UPDATES

  • A new UK-based research project to understand ‘normal breathing’ in under 6’s calls for participants to help our XLMTM community
    About the “Breathing Muscle Strength in Healthy Children” Study at Brunel University London Brunel University London is involved in an […]
  • The First Cork Hope Walk
    It really didn’t matter that it rained on and off, nothing could spoil the good mood of the walkers who had come along for the first Cork Hope Walk. The 8km walk, which was arranged by Orla Lynch and Stephen Stack, took us along the beautiful Rochestown to Blackrock coastal path. The views were stunning despite the grey sky, and we even got to admire Blackrock Castle where we stopped for the obligatory group photos. […]
  • Fundraising For Ruben
    Over 230 guests attended a hugely successful evening event that was arranged by Siân Carson whose gorgeous one year old son, Rubén, has myotubular myopathy. For the price of their tickets guests got to enjoy a beautifully decorated venue, lovely food, great music and endless great opportunities to raise funds. And boy did they do an amazing job of raising funds… […]
  • The Devon Hope Walk turns into a series of walks, raising over £1300 for Myotubular Trust!
    This year we tentatively planned a fourth Devon Hope Walk for the Myotubular Trust for early September, hoping everyone could make it, after once […]
  • Pretty Muddy Race For Life 2019
    Massive thanks and congratulations to Sarah, Emily and Tara, who recently took part in the 10K Pretty Muddy Race for Life at Sefton Park, Liverpool. […]

Regular Donations


From just £1 a month, a regular bank transfer to the Myotubular Trust soon adds up and really helps continue our vital work to fund research and find a treatment or cure for myotubular and centronuclear myopathy.

It gives us the ability to plan ahead; secure in the knowledge that we have guaranteed income. Regular giving also provides you with an easy and convenient way to control how you give.

All you need to do is set up a standing order via your online banking using the following details:

Account: Myotubular Trust
Bank: Co-Op Bank Limited
Sort Code: 08-92-99
Account No: 65200858

Please gift aid* your donation, that way we can claim an extra 25p for every £1 donated, at no extra cost to you. Please see a fuller explanation of how this works on the Gift Aid Form  (*UK tax payers only).

If you are setting up a regular donation please let us know at contact@myotubulartrust.org.

Alternatively, you can download, print and complete the standing order form and return it to:
Mr James Rosling
c/o Chalkdell Management Accountants
15a Barnard Road
London
SW11 1QT

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