NEWS & UPDATES
Hope, Walk and Help – Milton Keynes Hope Walk 2026July 20, 2026Our long term friends and supporters, Suri and Harvey, very kindly instigated our very successful first Milton Keynes Hope Walk in memory of their […]
Patrick smashes it again for Myotubular Trust with ‘The Full Tour’!June 27, 2026Having already completed a half marathon in support of the Myotubular Trust in May, our long-time supporter, Patrick, completed The Tour of Tameside, […]
London Hope Walk 2026 — A Day of Solidarity, Memory, and HopeJune 17, 2026Our 2026 London Hope Walk was another very special day. Taking place on June 6th, we were honoured to spend it with some of our longest‑standing […]
More than ‘just a coffee morning’ for GeorgeJune 9, 2026Lili and Josh, whose son, George, has myotubular myopathy, and Lili’s friend, Amy, contacted us to say that they were hosting a coffee morning in […]
Patrick’s Manchester half marathonJune 3, 2026Patrick became a huge supporter of the Myotubular Trust having been barber to a young boy, Joshua, who had myotubular myopathy. In Patrick’s […]
10k run in honour of NathanielJune 3, 20262026 marked the year that Nathaniel, who had myotubular myopathy, would have turned 18. In honour of Nathaniel and to mark the milestone, […]
Joint Research Call with Great Ormond Street Hospital Charity (GOSH) 2026/27May 20, 2026Great Ormond Street Hospital Charity has announced their 2026/27national funding call in child health research. Under this funding call £2.5M is […]
Why not join us in London, Saturday 6th June 2026 for the first of three Hope Walks?April 30, 2026We are delighted to invite you to join us for the first of three Hope Walks in 2026. The first walk takes place on Saturday 6th June, in London. […]
Calendar Of Events
Please contact us if you are interested in participating in the events below as we hold charity places in some of them. Thank you!
Hope Walk Weekends
Date: 11th June 2022 at 10.30am
Description: Myotubular Trust’s very own arranged walk is back in 2022 – London 10 Bridges, 10K Walk from London Bridge to Battersea Park! Email contact@myotubulartrust.org for more details on how to join this walk.
Link: www.myotubulartrust.org/hopewalks
Notes: We look forward to seeing you there.
Swim Serpentine
Location: The beautiful Serpentine in Hyde Park, the venue for the open water swimming competition at the London 2012 Olympic Games.
Date: 18th September 2021
Description: A series of swims of different lengths – half mile, one mile, two miles and ‘super six’
Link: https://www.swimserpentine.co.uk/how-enter/online-entry/
Notes: We have charity spaces available for this event – please contact us if you would like to join our team.
Ultra Challenge Series
Location: 14 different locations around the UK – see website for details
Description: A series of challenge events that you can walk, jog or run
Link: https://www.ultrachallenge.com/the-events
Notes: Registration options and fees vary – see website for details
Prudential Ride London
Location: London and Surrey
Description: A series of cycling events for all abilities and ages.
Link: www.prudentialridelondon.co.uk/about/overview/
Notes: Registration fees vary – see website for details
The Vitality Big Half London Run
Date: Sunday 25th April 2021
Location: London
Description: A popular half marathon which takes in the sights of London.
Link: https://www.thebighalf.co.uk
Note: Please contact us if you are interested in taking part in this event in support of Myotubular Trust.
Great Manchester 10K Run
Date: Sunday 26th September 2021
Location: Manchester
Description: A popular 10k run which is known for its buzzing atmosphere, incredible support and booming anthems!
Link: https://www.greatrun.org/great-manchester-run
Note: Please contact us if you are interested in taking part in this event in support of Myotubular Trust
Vitality London 10K Run
Date: Monday 31st May 2021
Location: London
Description: A popular 10K run which takes in the sights of London
Link: https://www.vitalitylondon10000.co.uk/
Note: Please contact us if you are interested in taking part in this event in support of Myotubular Trust
Virgin Sport Westminster British 10K
Date: Sunday 25th July 2021
Location: London
Description: A popular run which takes in the sights of London
Link: https://uk.virginsport.com/event/asics-london-10k-2020
BUPA Great Winter Run
Location: Edinburgh
Description: 10K run
Link: www.greatrun.org/great-winter-run
Notes: Entry fee TBC. Go online to sign up for a reminder service that informs when registration opens.
Tough Guy
Location: Wolverhampton
Description: The World’s safest, most dangerous taste of mental and pysical pain, fear and endurance.
Link: www.toughguy.co.uk
Notes: Team entries only (see website). Entry fees vary – see website for details
Hellrunner - In the Middle
Location: Hampshire
Description: Offers trail running at its toughest and most enjoyable. 10-12 miles of challenging off-road running, tough, twisting trails.
Link: www.hellrunner.co.uk
Notes: Open to anyone over 18 years of age
BUPA Great Run Events
Location: Throughout the UK
Description: Runs of various lengths for all abilities and ages – see website for more details
Link: www.greatrun.org
Notes: Entry fees vary, see website for more details
Edinburgh Marathon Festival
Location: Edinburgh
Description: Marathon, Half Marathon, 10K and 5K runs – something to suit everyone
Link: www.edinburghmarathon.com
Notes: Entry fees vary – see website for details
BUPA 10,000m Run
Location: Various
Description: 10K runs around London
Link: www.greatrun.org/events/10K
Notes: Entry fee varies, see website
Royal Parks Half Marathon
Location: London
Date: Sunday 11th April 2021 and October (date to be confirmed)
Description: A half marathon taking in the spectacular sites of the capital and the beautiful Royal Parks.
Link: www.royalparkshalf.com
Notes: Registration fees vary – see website for details
Spartan Race
Location: At various locations – see website for details
Description: A race for the adventurous – a range of distances taking in challenging obstacles and lots of mud!
Link: www.spartanraceuk.uk
Notes: Registration fees vary – see website for details
Paris Half Marathon
Location: Paris, France
Description: A half marathon that takes you through the streets of Paris and some of its most known landmarks.
Link: www.fitbitsemideparis.com/us/
Notes: Registration fees vary – see website for details
BMW Berlin Marathon
Location: Berlin, Germany
Description: The race starts and finishes at the iconic Brandenburg Gate, before passing a whole host of fascinating landmarks along the way, including the Reichstag, Potsdamer Platz, and Berlin Cathedral.
Link: www.bmw-berlin-marathon.com/en/
Notes: Registration fees vary – see website for details
Amsterdam Marathon
Location: Amsterdam, Netherlands
Description: The TCS Amsterdam Marathon is known for its fast and beautiful course. The start and finish take place in the historical Olympic Stadium.
Link: www.tcsamsterdammarathon.nl/en/registration/
Notes: Registration fees vary – see website for details
London Triathlon
Location: London Date: Saturday 7th and Sunday 8th August 2021
Description: Swim, cycle and run in one of four distances of triathlon.
Link: www.thelondontriathlon.com/home/
Notes: Registration fees vary – see website for details
Fundraising Toolkit
- How to Set Up An Online Sponsorship Form
- Sponsorship Form
- Thank You Leaflet
NB: Please ask if you’d like your leaflet or form to feature a particular child.
Feel free to email us anytime at: contact@myotubulartrust.com