Earlier this year, we heard from Siân Carson, who told us that she was going to arrange a fundraising event, having been inspired by her gorgeous 1 year old son, Rubén (Roo), who has myotubular myopathy.

We could never have anticipated what Siân was going to pull off – a hugely successful evening event that was attended by more than 230 guests who came out to celebrate Rubén. For the price of their tickets guests got to enjoy a beautifully decorated venue, lovely food, great music and endless great opportunities to raise funds.

After the event, Siân told us, “We wanted to do something to give back to the Myotubular Trust for all of their much needed support since Rubén’s diagnosis. We wanted to do something where we could get all of our friends and support together under one roof and celebrate them too and that is what we did! We had over 230 people pass through the doors and hand over their pennies and pounds for multiple chances at winning amazing prizes, auctions and more and boy did they spend! Everyone had the most amazing night and there was a sore head or ten dozen come the morning! We all enjoyed it so much, I think we will make it a regular occurrence. Money well spent, for such a special charity…”

We would like to say a massive thank you to the many friends, family, companies and sports clubs who donated raffle and auction items, all of which were beautifully wrapped and presented on the night!   And thanks also to Sian’s mum and her team for their help, and to Adam for his great babysitting!

We are so delighted that fun was had by all and that after the initial nerves, Siân enjoyed herself too! And thanks to Siân for the endless coin counting and bagging, and multiple trips to the bank to donate the amazing amount raised – you are a star!