The National Institute for Health and Care Research (NIHR) would like to invite you, and your healthcare professionals to a Webinar on severe neuromuscular diseases in children, on Wednesday 12th July 2003 from 7pm to 8pm (UK time). The public are invited to ask questions of leading experts about the latest research into severe neuromuscular diseases in children, with The University of Oxford’s Dr Sithara Ramdas and Prof Laurent Servais answering your questions in this ‘ask the expert’ event.
Join the online Q&A: severe neuromuscular diseases in children
As well as inviting questions about Duchenne muscular dystrophy, congenital muscular dystrophy, congenital myopathy, inherited neuropathy, limb girdle muscular dystrophy and spinal muscular atrophy, they can also answer questions about myotubular and centronuclear myopathy.
The event is hosted by the National Institute for Health and Care Research, which supports delivery of research in the NHS, public health and social care and Muscular Dystrophy UK, the UK charity for individuals and families living with muscle-wasting conditions.
Dr Ramdas is a Honorary Senior Clinical Lecturer at the Specialised Translational Research Oxford Neuromuscular Group at the Department of Paediatrics, University of Oxford and a Consultant Paediatric Neurologist at Oxford University Hospitals NHS Foundation Trust.
Prof Servais is Professor of Paediatric Neuromuscular Diseases at the MDUK Oxford Neuromuscular Centre at the Department of Paediatrics, University of Oxford and an Honorary Consultant at Oxford University Hospitals NHS Foundation Trust.
Asking your questions will be Dr Kate Adcock, Director of Research and Innovation at Muscular Dystrophy UK.
Guests must sign up in advance using this form where they can enter their question. They will also be able to ask their question during the event in the text box provided. Those unable to attend can provide their email address using the above form to be sent a link to a recording of the event.
It will be hosted on video conferencing service Google Meet, which can be accessed through a computer browser or the Google Meet app for devices. For queries contact comms.crnthamesvalley@nihr.ac.uk
Participating in health research helps develop new treatments, improve the NHS, public health and social care and save lives. Search for studies seeking volunteers and sign up to be contacted about studies near you at Be part of Research.
The NHS, public health and social care supports research by giving patients opportunities to take part in trials. Healthy people can also take part so results can be compared to those with a medical condition.
Patients are also encouraged to ask their doctor or health professional about research opportunities and to view and sign up be notified about trials seeking volunteers at the Be Part of Research website.
Co-hosted by Muscular Dystrophy UK
