We are very pleased to invite our community to a virtual coffee morning on July 4th 2020, between 10am – 12 noon, with some of the UK’s leading neuromuscular experts. You can join us from the comfort of home, using a computer, tablet or phone.
Professor Francesco Muntoni, Professor Ros Quinlivan and Dr Giovanni Baranello will provide an update on what has been learnt in the last couple of months about the impact of Covid19 for neuromuscular patients in the UK. They will also present to us on the ongoing and planned clinical trials in the UK for myotubular and centronuclear myopathy, and share their experiences of similar trials for other neuromuscular conditions. We will also provide a summary of the UK regulatory processes – from how clinical trials get approved to how drugs get signed off by NICE.
We will round the morning off with an open Q&A session, and we look forward to seeing as many of you as possible.
Please register to join:
Please email melaniespring@myotubularmyopathy.org if you would like to attend and we will send you a personal Zoom invite, and instructions on how to join.
Download the leaflet as a PDF.
