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Every Step Brings Hope: Highlights from Liverpool’...
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Myotubular Trust
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NEWS & UPDATES

  • Every Step Brings Hope: Highlights from Liverpool’s Epic 10K Walk
    September 20, 2026
    The second Liverpool Hope Walk took place on a sunny and warm September morning and what a crowd it attracted. 157 people were registered and we […]
  • Hope, Walk and Help – Milton Keynes Hope Walk 2026
    July 20, 2026
    Our long term friends and supporters, Suri and Harvey, very kindly instigated our very successful first Milton Keynes Hope Walk in memory of their […]
  • Patrick smashes it again for Myotubular Trust with ‘The Full Tour’!
    June 27, 2026
    Having already completed a half marathon in support of the Myotubular Trust in May, our long-time supporter, Patrick, completed The Tour of Tameside, […]
  • London Hope Walk 2026 — A Day of Solidarity, Memory, and Hope
    June 17, 2026
    Our 2026 London Hope Walk was another very special day. Taking place on June 6th, we were honoured to spend it with some of our longest‑standing […]
  • More than ‘just a coffee morning’ for George
    June 9, 2026
    Lili and Josh, whose son, George, has myotubular myopathy, and Lili’s friend, Amy, contacted us to say that they were hosting a coffee morning in […]
  • Patrick’s Manchester half marathon
    June 3, 2026
    Patrick became a huge supporter of the Myotubular Trust having been barber to a young boy, Joshua, who had myotubular myopathy.  In Patrick’s […]
  • 10k run in honour of Nathaniel
    June 3, 2026
    2026 marked the year that Nathaniel, who had myotubular myopathy, would have turned 18. In honour of Nathaniel and to mark the milestone, […]
  • Joint Research Call with Great Ormond Street Hospital Charity (GOSH) 2026/27
    May 20, 2026
    Great Ormond Street Hospital Charity has announced their 2026/27national funding call in child health research. Under this funding call £2.5M is […]

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Myotubular Trust updated their cover photo.

7 hours ago

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Proud to say I'm in there 🏃♥️

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Myotubular Trust

6 days ago

Myotubular Trust

Our 2026 Hope Walks are concluded for another year and what a special time we had in London, Milton Keynes and Liverpool. Thank you so much to everyone who organised routes, took part, volunteered and donated so generously. The three walks combined have raised over £30,000 and that amount continues to rise. Every single penny of this staggering amount will contribute to future research.

myotubulartrust.org/fundraising-news/

Thank you to the army of incredible people who made this possible. We truly are stronger together. Until next year....
... See MoreSee Less

Our 2026 Hope Walks are concluded for another year and what a special time we had in London, Milton Keynes and Liverpool. Thank you so much to everyone who organised routes, took part, volunteered and donated so generously.  The three walks combined have raised over £30,000 and that amount continues to rise. Every single penny of this staggering amount will contribute to future research.

https://myotubulartrust.org/fundraising-news/

Thank you to the army of incredible people who made this possible. We truly are stronger together. Until next year....Image attachmentImage attachment
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Myotubular Trust

2 weeks ago

Myotubular Trust

What a formidable sight to see so many of our fantastic supporters, old and new, at the Liverpool Hope Walk today, and with sunshine too. Another truly special day spent with incredible people. This wrapped up our 2026 Hope Walks beautifully.

Huge thanks to all who helped to make today so memorable, and to all of their very generous sponsors. We hope to get to see some of you again next year.... #togetherstronger #liverpoolhopewalk2026
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What a formidable sight to see so many of our fantastic supporters, old and new, at the Liverpool Hope Walk today, and with sunshine too. Another truly special day spent with incredible people.  This wrapped up our 2026 Hope Walks beautifully.

Huge thanks to all who helped to make today so memorable, and to all of their very generous sponsors. We hope to get to see some of you again next year.... #TogetherStronger #LiverpoolHopeWalk2026
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Congratulations too all the walkers xx

🩷🩷🩷🩷

Well done everyone 👏👏 xx

What a fantastic turnout! Well done and thanks to everyone involved (y)

Very fine photo

Unbelievable turn out and great to see Melanie Spring and Wendy and not forgetting Anne Lennox on the video call !!!! I need Stanley's Auntie to see this and inbox me xx

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Myotubular Trust

4 weeks ago

Myotubular Trust

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Myotubular Trust

2 months ago

Myotubular Trust

🗓️One month today until the Liverpool Hope Walk - Sunday 13th September. .
👨🏼‍🦼‍➡️5K or 10K walk or roll. Fully accessible, scenic, canal-side route - ALL welcome
💷 Every penny raised goes directly to fund research.
👏There's still time to register
📝Drop us an email or post in the comments below to join or for more information...melaniespring@myotubulartrust.org
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🗓️One month today until the Liverpool Hope Walk - Sunday 13th September. .
👨🏼‍🦼‍➡️5K or 10K walk or roll. Fully accessible, scenic, canal-side route - ALL welcome
💷 Every penny raised goes directly to fund research.
👏Theres still time to register
📝Drop us an email or post in the comments below to join or for more information...melaniespring@myotubulartrust.org
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Can't wait!

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UK Registered Charity No: 1137177 (formerly 1113809)
Founding Patron: Professor Victor Dubowitz, Emeritus Professor of Paediatrics, Imperial College London; President of World Muscle Society
Scientific Advisor: Professor Francesco Muntoni, Professor of Paediatric Neurology, University College London

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