The lifeblood of the Myotubular Trust ever since we were founded has been the generous support of the extended families and communities around individual children. The effect has ‘rippled’ out further than we ever could have imagined, as came about in recent months when the Trust received a substantial donation and support from Texel Finance Limited.

William Shaw, an employee of this young, vibrant and highly successful company, nominated the Trust for charitable support and we were fortunate enough to be chosen. William’s link to the Trust is that his wife, Susanne’s close friend, Johanna, was in an ante-natal group with Tom’s mum, Anne! Anne is one of the founders of the Myotubular Trust.

We are indebted to William for thinking of us and, of course, to all at Texel. We are delighted to have the support of such a great team.