We are delighted to announce the winner of the Easter Chocolate Quiz – Jane Evans. Jane was absolutely thrilled with her chocolate surprise which we were pleased and relieved to hear arrived through the post intact! We would like to thank Jane and everybody who entered the quiz for their support. We had some great feedback and loved hearing that the quiz had been a winning source of entertainment on a long coach trip! A special thanks to Linda Fowler who came up with a great idea and administered the Chocolate Quiz, which we now hope will become an annual fun activity!
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NEWS & UPDATES
- The Devon Hope Walk turns into a series of walks, raising over £1300 for Myotubular Trust!September 11, 2019This year we tentatively planned a fourth Devon Hope Walk for the Myotubular Trust for early September, hoping everyone could make it, after once […]
- Pretty Muddy Race For Life 2019September 4, 2019Massive thanks and congratulations to Sarah, Emily and Tara, who recently took part in the 10K Pretty Muddy Race for Life at Sefton Park, Liverpool. […]
- Dynacure provides new information on their investigational treatment for CNM patients with MTM-1 or DYN-2 mutationsSeptember 4, 2019On 3 September, Dynacure released a letter to our patient community to include questions such as:- What are the goals of the Phase 1/2 clinical […]
- Next Steps for AT132 Gene Therapy Programme – Audentes Therapeutics Update, August 2019September 2, 2019Audentes Therapeutics have published a letter, dated August 2019, for our Patient Community which can be accessed below. The letter provides details […]
- Please join us for two Hope Walks in September, in Devon & IrelandAugust 14, 2019Every year the Myotubular Trust organises their own walking event called the ‘Hope Walk’ in London over a weekend in May. This year, we […]