The Myotubular Trust is delighted to be receiving sponsorship in 2016/17 from Christie & Co, the UK’s largest business sales specialist. Since the charity was set up in 2006, Christie & Co has supported our work with donations, t-shirt sponsorship, attending flagship fundraising events and sending out our charity cards, to name a few. 

September 2017

The team in Birmingham recently held the Great Birmingham Office Bake Off.  They wanted to raise as much dough as they could for the Trust and asked their friends and colleagues to dig deep into their apron pockets to show their enthusiasm in raising money!

The judging panel, Lee Hollywood & Rupi Berry, selected the winner, Nicole Jones, who made a fabulous Eton Mess sponge cake.  Congratulations Nicole!

We would like to thank everybody who supported the Bake Off, and hope that you have thoroughly enjoyed those goodies – they all look delicious!


September 2017

Massive thanks and congratulations to members of the Finance Team who completed the Thames Bridges Trek, a 25km charity walk across 16 London Bridges.  We are so grateful to the team who came together from across the country, from as far afield as Scotland, to support the Trust.

Nicole Jones told us, “The walk went really well, everyone finished in under 5 hours (just about!) The weather stayed dry and everyone enjoyed themselves, a couple of us are angling to do the 50km next year. It was a challenge in some places as the route took us past Southbank and Borough Market so it was more difficult to stay at a certain pace!”

The team have well and truly exceeded their fundraising target and we are immensely grateful to them and their very generous sponsors.  Thank you all!


August 2017

Hopetoun Farmshop were so grateful for the speculative advice given to them by Edinburgh office’s Daniel Arrandale that they have made a very generous donation to the Trust.  The donation was given as a reflection of Daniel’s help which they described as ‘extremely helpful and enlightening’.

Massive thanks to both Hopetoun Farmshop for their generosity and to Daniel for instigating it.

July 2017

On July 18th the Medical Team completed a 25KM Thames Walk from their London offices in Blackfriars, all the way to Kew.  The route alongside the Thames was stunning and provided the odd opportunity for refreshments and pit stops!

Among the team of walkers was Simon Hughes, whose son Zak is the inspiration for the phenomenal Christie & Co fundraising in support of the Myotubular Trust.  Simon’s wife, Wendy, is a co-founder of the Trust.

We are told that the blistered feet were all worth it, that everybody had a great day with great camaraderie and team support, and that it provided quality time to bond and discuss work projects in a different and inspiring setting.

Massive thanks and congratulations to the Medical Team for their achievement and for their tremendous fundraising.  We hope that the aches and pain soon pass!

July 2017

Massive thanks to the Leeds team who held a summer barbecue on July 5th for professionals and clients.

During the event, they held a champagne raffle which raised £100 for the Trust.  The lucky winner of a bottle of Moët & Chandon was Joseph Richardson, Manager Director of Jos Richardson & Son.

Congratulations Joseph – we hope you enjoyed your prize!

June 2017

Following their successful practice climb of one of the Yorkshire Three Peaks, 22 members of staff from the North offices took on the Yorkshire Three Peaks Challenge; a route over 24 miles long which included 5,200ft (1,585m) of ascent.

Laura Hunter told us, “Well, we did it! All 22 of us completed the trek so I’m feeling very proud of everyone! Some of us did it in 10.5 hours and the others in 12 hours.  You’ll also see we’ve exceeded our fundraising target, which is the icing on the cake for me!”

You can see all the photos of the day here

Well done to each and every member of the Three Peaks team on completing the challenge – we are so grateful for your amazing support and for your tremendous fundraising.

June 2017

On Friday 9th June, a team from Glasgow and Edinburgh offices took on the highest mountain in Britain, Ben Nevis.

We were delighted to have heard from Louise Plommer that everyone felt a great sense of achievement in completing the event.  Seeing the photo of the team at the top of the summit was pretty special for us, as was seeing the Myotubular Trust t-shirt taking pride of place up there!

Congratulations to the entire team for not only smashing the challenge but for smashing your fundraising target too.  We are in admiration and truly grateful.


April 2017

A team of 23 staff from Leeds, Manchester and Newcastle upon Tyne offices are taking on the Yorkshire Three Peaks Challenge in June.  Some of them took part in a practice climb of one of the peaks.

We’re are so glad that the sun shone for you and that it all went well.  We wish you all the very best of luck with the remainder of your training and with the event itself.  Thank you!

In the spirit of Easter & Spring, full advantage was taken of the birth of Exeter based Anthony’s flock of Wensleydale sheep which had their first two sets of twins; three ram lambs and one ewe.

In return for a donation, names for the new-borns were put into the proverbial hat and Anthony drew out a name for each of the lambs – winners each received a bottle of wine.

There was no shortage of creativity amongst the entries – suggestions included Sheepy McSheepface, Lady Baa Baa, Jean Claude Van Ramme and Wool. I. Am.

Thanks to the organisers and to all who took part and congratulations to the winners.

Tup-perware, Yum!, Rambo and Roger, we hope you and Anthony like your new names….

In the South West Region the fundraising drive was kicked off with an Easter Raffle with a selection of nine prizes to be won.

The raffle was a huge success and was drawn on Friday 7 April 2017 by Zak Hughes – who has myotubular myopathy – in the Exeter office.

Many thanks to Robyn and Jo for organising the raffle and to all who brought tickets.  We hope the lucky winners enjoyed their prizes.

March 2017

We are hugely grateful to Julie Kitson in Newcastle Upon Tyne for completing the Vesta Head of the river challenge on the River Thames, in a crew of 8 women.

Julie told us, “The row went very well albeit hard work but we were blessed with great weather.

I hope that these photos give you a flavour of the day.  There were over 240 crews that took part and rowed what is generally known as the route for the Oxford Cambridge boat race.  You will be able to see this on Sunday 2nd April however they will be rowing a little faster than we were!

We boated at ten am but had to row up to Putney bridge and hang about for about an hour before we set off towards Hammersmith Bridge towards the start. We finished about 2k past Barnes railway bridge.  In total I think we actually rowed about 10 miles although the race is only 4!

We didn’t come last but 16 minutes is a good time for our age group on this course.  This is the last of the long distance rowing competitions for this year as the regatta season starts soon so training commences for those.”

Congratulations Julie on such a wonderful achievement – we are in ‘oar’ of you!  And thanks to you and your supports for raising such a fantastic amount in sponsorship.


January 2017

Christie Finance kindly organised a Charity Raffle in support of the Trust, with a superb prize – a box of 15 international beers & ales, produced by Independent Breweries.
Many thanks to the organisers and to all who brought raffle tickets, and many congratulations to the lucky winner, Fiona. We hope you enjoyed your prize!

December 2016

Feeling Festive in the North ….The Leeds, Newcastle & Manchester offices of Christie & Co got into the Christmas spirit by celebrating Christmas Jumper Day.

The staff who were in the office on the day wore their wonderful (and sometimes wacky!) Christmas jumpers and others who couldn’t attend also donated too.

December 2016

We are so grateful to our friends Christie & Co London for donning a fantastic array of Christmas jumpers as part of their fundraising for the Trust.

Maria Isabel Diez, who is the senior receptionist and the organiser of this very successful event, told us, “ I am so happy today – it’s been a successful Christmas Jumper Day at the office 🙂 Seeing everyone wearing their Christmas jumper for such a loving cause is an amazing feeling. I feel very grateful to be able to help and today was a clear example that together we can do so much!”

In keeping with the Christmas theme, the team in London have also been selling the Christmas cards designed by those affected by myotubular and centronuclear myopathy, and making donations in return for some tasty home baked goodies.

Our thanks go to Maria and her colleagues for their wonderful support – we hope you all enjoyed the day.

November 2016.

We are delighted that in our tenth year that the Company has formally adopted us to help us continue our aim of finding a cure or treatment for all forms of myotubular myopathy. Christie + Co has already made a flying start since announcing the sponsorship in July, with t-shirt sponsorship once again and encouraging everyone at Christie & Co to organise their own individual fundraising activities which will be promoted and featured in their staff newsletters.

David Rugg, Chairman of Christie & Co said “Other than Christie & Co’s obvious connection with Zak who has x-linked myotubular myopathy and who is the son of one of our colleagues, the one other point was that the Trust was an opportunity we felt to make a real difference to a group that nothing else was being done for in the UK.
It wasn’t a case of being one of thousands supporting an established good cause. Without the Trust’s and your friends’ herculean efforts, nothing would have been achieved. We do feel a fantastic amount has been learned in the past 10 years, and through recent and future studies we are on the cusp of an implementable cure. Our team feel good to have played a very small supporting role so far, and are keen to help further with the valuable work of the Myotubular Trust.”

Zak, the Founders and Trustees are so very grateful to everyone at Christie & Co for their generosity and support to make a real difference for our group of conditions known as Myotubular Myopathy.  Their corporate friendship and recognition is really heart-warming and gives so much hope for our global community who are affected by this rare and devastating condition.

To find out more about the work of the Trust and how your help makes a difference, please watch our film –


Two of our families’ boys, William and Zak, wearing Christie & Co sponsored t-shirts