On 7th September 2019, at 1.30pm we will be pulling on our walking gear and boots once again and welcoming you to join us to walk the rural coastal path, circling around the pretty Devon village of Noss Mayo. The walk is in aid of the Myotubular Trust. If you would like to take in stunning sea views, followed with delicious refreshments in one of Noss Mayo’s waterside village pubs, please read here for details on how to register.  This beautiful circular walk is 10 kilometres in length, rugged in parts, but accessible to wheelchairs and buggies in some stretches. Feel free to contact wendyhughes@myotubulartrust.org if you have any questions.

 Register Now  Start Fundraising


If you would like to join us on 7th September 2019:

  1. Please read our terms and conditions and register yourself
  2. Feel free to send this fundraising link out to friends and family to raise sponsorship (using Wonderful.org).


A selection of local guest-houses, B&B’s, self catering and hotels*. Other self-catering can be found at: Airbnb

Worswell Burton Farmhouse – B&B, Noss Mayo
Pilchards Inn – Self Catering, Noss Mayo

Rose & Crown Pub – Inn Rooms, Yealmpton

Kitley House Hotel, Yealmpton

*Please note that public transport in the area is limited and cannot be relied upon.



Devon Hope Walk was a super day!

Click here to see the whole Devon Hope Walk Album

‘“What a super day!” were the words exclaimed by one of our 63 Devon Hope walkers this weekend. She beautifully sums up how we all seemed to be feeling after our first Myotubular Trust Devon Hope Walk, held on Sunday 15th July. With a light coastal breeze and clear blue skies, it couldn’t have been a more perfect day for walking 10 miles around the coastline, and in such good company!

Some wonderful families, friends and supporters of all ages and abilities, joined us for our very special first Hope Walk to support a cure for children with myotubular myopathy. A few of our walkers had a personal link to an affected child which made it feel quite emotional. This walk was also in memory of Daniel and Will and it was an honor to have family and friends join us to walk for them.

Following a warm welcome speech at 10am on South Milton Beach, we had a group photo. We were pleased that our son Zak, who has myotubular myopathy could join us for that. Then we all set off towards Hope Cove along some stunning coastline.

Everyone looked fabulous wearing the striking black and pink Myotubular Trust t-shirts kindly sponsored by Christie + Co. The occasion seemed to stir a lot of interest amongst locals and visitors to the area, with many passers by throwing donations into the collection tins that some of us carried along the way.

A Stunning And Scenic Route

At Hope Cove, the families with younger children, decided to stop and double back to the start point, making it a 3 mile walk. With most of the 3 mile walkers waiting for the more ambitious walkers to finish our first 7 mile loop of the route so that they could accompany us on our route back towards South Milton, Hope Cove provided a nice spot to eat ice-creams and enjoy the beach while they waited.

So the more ambitious among us soldiered on up the steep grassy coastal path by Hope Cove around to Bolt Tail, and then upwards again towards Bolberry Down. The scenery was far too stunning at the top for any of us to even notice that our legs were really aching! After carefully negotiating the slippery and muddy path down Sweethearts Lane, we found our way back up to the ridgeway path, before looping back towards the sea, returning to Hope Cove. Down some steps past the pretty St Clements Church which sits above this small fishing village, many of were beginning to feel quite weary, so we decided to make our first stop for a pint of scrumpy (Devon cider) or a cream tea in the village before contemplating the next leg of our walk around the coast at Bantham.

Passing through the coastline at South Milton just after noon, the beach was beginning to get very busy. The Beach Hut were selling our Myotubular Trust cupcakes to raise funds for the charity. While a few decided to finish here at the 7 mile mark, the remainder of us stopped momentarily and to catch our breath, before we skirted the coast by the golf course and headed towards The Sloop Inn at Bantham, making it a full 10 mile walk. After more pints of scrumpy, we made the final steep route back uphill into Thurlestone Village and to the Village Inn. The last of our walkers arrived at the pub just before 5pm, exhausted, aching but exhilarated for having achieved just over 10 miles of walking and all for a good cause.

So Many “Thank Yous”

The biggest thanks goes to all our wonderful Devon Hope Walkers for joining us on the day and making it such a special atmosphere.

We would like to thank those who came to walk for other children affected by myotubular myopathy. We had many lovely friends joining us from other parts of the country, as well as locally.

Thanks to our generous sponsors Christie + Co for the fabulous t-shirts, and to Caryn Moore for baking delicious Myotubular Trust cakes. Angela Heath deserves a special mention for helping to plan the perfect route and advise local farmers so livestock was kept out of our way. Steve and Ali Dyke did a great job with the signage around the route and were our first aiders. Tescos kindly provided us with our water bottles. Thanks to the following pubs and cafes who were so enthusiastic about getting involved to support us too: The Sloop at Bantham, The Village Inn at Thurlestone, The Beach Hut at South Milton and Alfrescos in Dartmouth. Thanks to those lovely people (you know who you are) who helped to spread the word about the walk and encourage others to join in. The tractor was fantastic so many thanks to Chris Luscombe for arranging that. Sue Hill did a fantastic job at capturing the atmosphere of the day with her photography. And lastly, we are especially grateful to whoever kindly thought to arrange for such gorgeous sunshine, which absolutely made the day!

We were so delighted to receive such great and enthusiastic support for our first charity walk in Devon and help to find a cure for children born with the rare, life-limiting genetic condition myotubular myopathy. We really hope you will consider joining us again next year!’ Wendy