The wonderful Royal Brompton Hospital has come up trumps again, and made it possible for the Trust to host a mental health and wellbeing presentation for our UK patient, parent, family & carer community to mark Rare Disease Day 2021.  So on Saturday 6th March ‘Coping Through Covid & Beyond‘ will be delivered by the inspiring Dr Christianna Kyriacou, Counselling Psychologist who is based at the Royal Brompton and who will be sharing the latest thinking on wellbeing and mindfulness tools and techniques.

Email melaniespring@myotubulartrust.org to reserve your Zoom place.

Please feel free to answer the following questions before the Webinar and send your responses to us no later than Thursday 4th March 2021. The information included in your email will remain confidential with all responses anonymised prior to sharing with the presenter-

  1. What are your main concerns affecting your wellbeing at present?
  2. What have you found to be the most helpful during the pandemic?
  3. Is there any one thing that makes things worse for you?
  4. Is there any one topic you are particularly interested in learning more about?

We appreciate your cooperation in helping us prepare for this event and look forward to welcoming you. Thank you.