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NEWS & UPDATES

  • A new UK-based research project to understand ‘normal breathing’ in under 6’s calls for participants to help our XLMTM community
    About the “Breathing Muscle Strength in Healthy Children” Study at Brunel University London Brunel University London is involved in an […]
  • The First Cork Hope Walk
    It really didn’t matter that it rained on and off, nothing could spoil the good mood of the walkers who had come along for the first Cork Hope Walk. The 8km walk, which was arranged by Orla Lynch and Stephen Stack, took us along the beautiful Rochestown to Blackrock coastal path. The views were stunning despite the grey sky, and we even got to admire Blackrock Castle where we stopped for the obligatory group photos. […]
  • Fundraising For Ruben
    Over 230 guests attended a hugely successful evening event that was arranged by Siân Carson whose gorgeous one year old son, Rubén, has myotubular myopathy. For the price of their tickets guests got to enjoy a beautifully decorated venue, lovely food, great music and endless great opportunities to raise funds. And boy did they do an amazing job of raising funds… […]
  • The Devon Hope Walk turns into a series of walks, raising over £1300 for Myotubular Trust!
    This year we tentatively planned a fourth Devon Hope Walk for the Myotubular Trust for early September, hoping everyone could make it, after once […]
  • Pretty Muddy Race For Life 2019
    Massive thanks and congratulations to Sarah, Emily and Tara, who recently took part in the 10K Pretty Muddy Race for Life at Sefton Park, Liverpool. […]

Calendar Of Events

Please contact us if you are interested in participating in the events below as we hold charity places in some of them. Thank you!

Sunday 21st July 2019 - Virgin Sport Westminster British 10K

 

Note: We have charity spaces available for this event – please contact us if you would like to join our 2019 team.

10K2009_finishingfoto

 

 

 

 

 

Date: Sunday 21st July 2019
Location: London
Description: Join other Myotubular Trust runners in this popular 10K run which takes in the sights of London
Link: https://uk.virginsport.com/event/asics-london-10k-2019

 

 

Hope Walk Weekends

 

londonwalk

Date: 18th May 2019 London Hope Walk  / Devon Hope Walk – 7th September 2019.
Description: Myotubular Trust’s very own arranged walk – be part of something special!
www.myotubulartrust.org/hopewalks

Notes: Join a walk or why not be inspired to arrange your own?

 

BUPA Great Winter Run

 

 

edinburgh-walk

Location: Edinburgh
Description: 10K run
Link: www.greatrun.org

Notes: Entry fee TBC. Go online to sign up for a reminder service that informs when registration opens.

 

Tough Guy

hellrunner3-wolverhampton

Location: Wolverhampton
Description: The World’s safest, most dangerous taste of mental and pysical pain, fear and endurance.
Link: www.toughguy.co.uk

Notes: Team entries only (see website). Entry fees vary – see website for details

 

Hellrunner - In the Middle

Hellrunner-hants

Location: Hampshire
Description: Offers trail running at its toughest and most enjoyable. 10-12 miles of challenging off-road running, tough, twisting trails.
Link: www.hellrunner.co.uk

Notes: Open to anyone over 18 years of age

 

 

BUPA Great Run Events

 

 

greatrunlogo

 

 

 

 

Location: Throughout the UK
Description: Runs of various lengths for all abilities and ages – see website for more details
Link: www.greatrun.org

Notes: Entry fees vary, see website for more details

 

Edinburgh Marathon Festival

 

 

 

Edinburgh-marathon-festival

 

Location: Edinburgh
Description: Marathon, Half Marathon, 10K and 5K runs – something to suit everyone
Link: www.edinburghmarathon.com

Notes: Entry fees vary – see website for details

 

 

 

 

BUPA 10,000m Run

 

London-10000-4

 

 

 

 

 

Location: London
Description: 10K run around London
Link: www.london10000.co.uk

Notes: Entry fee £35.00

Hellrunner - Down South

 

 

hellrunner2-staffs2

Date: TBC
Location: Staffordshire
Description: Offers trail running at its toughest and most enjoyable 10-12 miles of challenging off-road running, tough, twisting trails.
Link: www.hellrunner.co.uk

Notes: open to anyone over 18 years of age

Prudential Ride London

ridelondon

Location: London and Surrey
Description: A series of cycling events for all abilities and ages.
Link: www.prudentialridelondon.co.uk/about/overview/

Notes: Registration fees vary – see website for details

Royal Parks Half Marathon

 

royalparksmara

Location: London
Description: A half marathon taking in the spectacular sites of the capital and the beautiful Royal Parks.
Link: www.royalparkshalf.com

Notes: Registration fees vary – see website for details

 

Spartan Race

 

spartan

Location: At various locations – see website for details
Description: A race for the adventurous – a range of distances taking in challenging obstacles and lots of mud!
Link: www.spartanraceuk.uk

Notes: Registration fees vary – see website for details

Swim Serpentine

 

Note: We have charity places available for the 1 mile and 2 miles swims – please contact us if you would like to join our 2019 team! Thank you.

Location: The beautiful Serpentine in Hyde Park, the venue for the open water swimming competition at the London 2012 Olympic Games.

Description: A series of swims of different lengths – half mile, one mile, two miles and ‘super six’

Link: https://www.swimserpentine.co.uk/how-enter/online-entry/

Notes: Registration fees vary – see website for details or contact us for a place in the 1 or 2 mile swims.

 

Bear Grylls Survival Challenge

 

 

 

 

beargrylls

Location: London, Cambridge, Edinburgh and Manchester
Description: A series of challenges, designed to help you find your warrior spirit and prove that life is a journey best lived boldly.
Link: www.beargryllssurvivalchallenge.com

Notes: Registration fees vary – see website for details

 

 

Paris Half Marathon

 

 

parishalfmara

Location: Paris, France
Description: A half marathon that takes you through the streets of Paris and some of its most known landmarks.
Link: www.fitbitsemideparis.com/us/

Notes: Registration fees vary – see website for details

Colour Vibe 5k

 

 

 

colourvibe

Location: Various locations throughout the UK and worldwide
Description: Get blasted with colour as you take part in this highly enjoyable fun-run, with a great atmosphere
Link: http://uk.thecolorvibe.com/index.php

Notes: Registration fees vary – see website for details

 

 

 

BMW Berlin Marathon

 

 

 

bmwberlin

Location: Berlin, Germany
Description: The race starts and finishes at the iconic Brandenburg Gate, before passing a whole host of fascinating landmarks along the way, including the Reichstag, Potsdamer Platz, and Berlin Cathedral.
Link: www.bmw-berlin-marathon.com/en/

Notes: Registration fees vary – see website for details

Amsterdam Marathon

amsterdammara

Location: Amsterdam, Netherlands
Description: The TCS Amsterdam Marathon is known for its fast and beautiful course. The start and finish take place in the historical Olympic Stadium.
Link: www.tcsamsterdammarathon.nl/en/registration/

Notes: Registration fees vary – see website for details

London Triathlon

 

londontri

Location: London
Description: Swim, cycle and run in one of four distances of triathlon.
Link: www.thelondontriathlon.com/home/

Notes: Registration fees vary – see website for details

Ultra Challenge Series

 

 

Location: 9 different locations around the UK – see website for details

Description: A series of challenge events that you can walk, jog or run

Link: https://www.ultrachallenge.com/the-events

Notes: Registration options and fees vary – see website for details

 

 

Velo North

Note: We have charity places available for the 50 miles and 100 mile routes – please contact us if you would like to join our 2019 team! Thank you.

Location: Starting and finishing in the heart of historic Durham City.  Velo North will take up to 15,000 cyclists on a truly spectacular 100/50 mile journey through the awe-inspiring Durham Dales and North Pennines Area of Outstanding Natural Beauty.

Description: Cycling event – 50 mile and 100 mile routes available.

Link: https://www.velonorth.com/

Notes: Registration fees vary – see website for details or contact us for a place in the 50 and 100 mile routes.

Fundraising Toolkit

Feel free to email us anytime at: contact@myotubulartrust.com

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