Design Your Own


It takes enthusiastic people to bring things ahead of schedule –
Professor Francesco Muntoni

Now has never been a more important time to keep donating and fundraising.  It is only with your help that we are able to continue funding research.

We hope that previous fundraisers’ stories will help to inspire you – an event can be as simple as a sponsored silence, to a fundraising ball. Enjoy being creative!

If you do need some help or ideas, please don’t hesitate to contact us.


How to raise funds with sponsorship

You can devise your own challenge, join an organised sporting event, or perhaps do something daring and out of the ordinary in return for individual or company sponsorship.

To make it easy for people to sponsor you:

  • Set yourself up an online sponsorship page or download and print off a sponsorship form
  • Please ask individuals who are UK taxpayers to tick the gift aid box and provide us with their full name, home address and postcode so that we can claim an extra 25p for every £1 donated at no extra cost to them (see details on the Gift Aid Form ).

Planning an event to raise funds

Events will give people something for their money – for example a cake or book sale, a wine and chilli night or a ball with a raffle and auction. For people who have already supported a sponsored event, it gives them a chance to contribute differently.

Our top tips are:

  • Allow plenty of time to plan and organise an event.
  • Where possible, try to delegate to make it easier on yourself. Never underestimate the value of friends and volunteers who will have another set of contacts, different skills and enthusiasm to help your event be a success.
  • Create a budget as a first step. This will save you investing lots of time and effort, and outlaying money for only a small return. Please note too that the charity is unable to finance events.
  • Be innovative and make it fun – this may help attract local media interest.
  • Perhaps combine more than 2 ideas where possible – you could offer a Wine and Chilli night, combined with a Paperback Exchange for example.
  • If you are organising your own event you will need to provide your own Public Liability Insurance. Contact insurance companies for quotes.
  • Please bear in mind you may also be required to fulfil other obligations, such as seeking permission if your event is being held in a public place, and doing a risk assessment. To find out how to fundraise legally and responsibly in the UK, see the Charity Commission website

Asking for donations in lieu of gifts

We are always humbled when our friends and supporters ask for charity donations to be made to the Myotubular Trust instead of receiving presents for a birthday or special occasion – and we feel honoured to be a part of your celebration.

Acknowledging and thanking your supporters

We all appreciate how much it means to be thanked. You can see who has supported you on our online sponsorship facility – but if you would like us to acknowledge particular sponsors on your behalf, please just ask us.

We can support you too

Please contact us if you would like any of the following:

  • A Myotubular Trust t-shirt*
  • Posters and stickers
  • Collection Box
  • Ask us to advertise the event on our website, sending us any photos and full details, or a story. 

* limited t-shirt stock because they are provided by generous sponsorship

Your Toolkit For Fundraising:

Please feel free to email us at any time on

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