Long term supporter, Patrick Scrivens, has been fundraising for the Trust since 2011 in honour of Joshua who was a regular customer in his barbers shop. Joshua made a huge impact on Patrick and inspired him to take up running to raise research funds to help children living with myotubular myopathy.

In previous years, Patrick has given up all of his favourite foods and drink throughout Lent and since 2010 he has been donning his running shoes and taking on longer distances each year.

This year, to kick-start his fundraising, and to do something different and help with his training for his 10k and half marathon runs, he ran a mile each of the 42 days of Lent. The weather certainly wasn’t kind to Patrick – snow, ice and freezing temperatures set out to challenge him – but he completed his mile around Oldham each and every day…… and for the grand finale he ran dressed as a cow!

Then in May, in glorious sunshine, Patrick ran his second half marathon in 8 months in Greater Manchester. Patrick’s family were there to cheer him on and met him at the finish line – a very proud and special moment for them all.

Next on Patrick’s running calendar was the Oldham 10k – a very hilly and challenging route with an elevation of 573ft. Yet again Patrick rose to the challenge and finished the 10k in a very respectable time.

But there’s more! Despite the fact that Patrick is getting married in October and is busy with all that entails, he is fitting in yet another run in September – the English half marathon. This event will complete Patrick’s 2018 fundraising and we really cannot thank him enough for his ongoing and tremendous support. We would also like to thank Vicky, Fred and Harry for supporting him throughout, and his many sponsors too for their generosity, year on year.

And finally, we would like to wish Patrick the very best of luck with the London Marathon lottery ballot for 2019…..

Patrick, we’re certain that Joshua would be impressed!