Leading researchers and clinicians from Europe, US and Canada presented their latest work in London on the weekend of the 14th & 15th July. The biotechnology companies, Audentes Therapeutics and Dynacure, both working to bring treatments for myotubular and centronuclear myopathy through clinical trials to the patient, also presented and these are shared online too now. We also have the presentations on genetic counselling, living independently, and from the world leading respiratory team from the Royal Brompton Hospital on the latest standards in respiratory and tracheostomy care.

The conference was a wonderful weekend with family members from our CNM/MTM community from Argentina, Germany, Italy, Holland, Ireland, Romania, Luxembourg, France, Portugal, Sweden, Lithuania, not to mention England, Scotland and Wales! The children had a wonderful day too from having a visiting zoo to gaming to arts and crafts galore – we have uploaded some photos of their day too – pictures speak a thousand words.

See our 2018 Family Conference Page for full details.